Life with Spina Bifida hasn’t always been a bed of roses.  Nor a bed of nails; but there’s always been a bed involved.  Since birth, nearly 50 years ago, hospitals and surgeries have stayed within an arm’s length.   Perhaps this is your story, too.  

Maybe you don’t have Spina Bifida.  For you, it could be parenting a child with Spina Bifida.  Perhaps you’ve just found out that you’re expecting a baby with Spina Bifida and have some fear of what that may look like in the coming days, months, and years. 

Whatever your relation to Spina Bifida may be,  I want to encourage you to visit this blog often.   It is my hope that in sharing my experiences living with Spina Bifida, you’ll find encouragement as we go through life together.  

Spina Bifida is just part of the story.  The other part is living life in a wheelchair.   I’ll discuss things like parking, accessibility, dating, what to say, not to say,  and some of the misconceptions that the general public may have about people in wheelchairs/ or with Spina Bifida.  

Allow me the opportunity to be your “roll” model.  I may not have all the answers you are looking for.  My only experience in Spina Bifida is in living it out.   

Are you ready to roll? 


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